A recent study by the Alzheimer’s Association found that the stigma around Alzheimer’s disease discourages adults from educating themselves about risk factors, seeking treatment and joining clinical trials for potential future treatments. Despite the importance of seeking help in the early stages of the disease, many adults choose to suffer in silence.
The Stark Reality
The Alzheimer’s Association recently surveyed over 300 adults who were given the description of a patient diagnosed with mild impairment or dementia due to Alzheimer’s. Each participant in the study was told whether the condition of the patient would improve, stay the same or deteriorate. A whopping 55% of respondents expected the patient, regardless of improvement or deterioration, would be discriminated against in the workplace and not be allowed to make their own medical decisions. Almost half thought that the patient’s medical records, like brain imaging or genetic testing, would cause limits to be imposed on their health insurance. While these findings don’t guarantee that those in the study would avoid seeking help if they found themselves in a similar situation, it does show the real fear of discrimination that many facing Alzheimer’s experience.
What Does Stigma Prevent?
- The stigma around Alzheimer’s disease can prevent patients from:
- Getting medical treatment
- Receiving a diagnosis (early or ever)
- Living with the best possible quality of life
- Making future plans
- Improving the quality of life from available treatments
- Building a strong support system
- Enrolling in clinical trials
Beyond the personal effects of stigma, it also prevents research from moving forward as rapidly as it could otherwise. Alzheimer’s research is funded at lower rates by the government, despite the cost of caring remaining very high.
Overcoming Alzheimer’s Stigma
How can you or your loved one overcome the stigma of experiencing Alzheimer’s at any stage?
- Be direct and open when talking about the disease. Talk with others about prevention, the need for more research, potential treatments and what a cure would mean to you.
- Know your facts and don’t be afraid to share them. Much of the stigma comes from false information and misconceptions about the disease.
- Get support, whether in a support group or from a group of peers. Stay involved in activities and relationships.
- Never allow yourself to be discouraged. You will encounter many people who do not understand Alzheimer’s, or who do not care to make the effort to understand it. That is never a reflection on you.
- Be part of the solution!
Partner with Senior Care Lifestyles
At Senior Care Lifestyles, we specialize in facilitating the connection between seniors and the right in-home care, assisted living and senior living communities. We have assisted hundreds of families with finding effective and affordable solutions for loved ones. Get in touch today by calling 410-977-3718!
